Showing posts with label Fulton County. Show all posts
Showing posts with label Fulton County. Show all posts

Thursday, April 5, 2012

Minor Miracles

Adaptive Baseball|Special Needs|North Metro Miracle League

Minor Miracles - Adaptive Softball League


This article first appeared on the Exceptional Parent website in April, 2008. We owe special thanks to so many of Amanda's teachers and paraprofessionals who volunteer their time to Miracle League!

We are very fortunate to have an adaptive softball league near our home. The North Metro Miracle League (NMML) provides inclusive adapted sports for children and adults of all abilities. As their website states, “Each of the NMML players has an on field Buddy to assist with the things the player’s disability makes difficult or impossible. The resulting interaction between buddy and player is an essential part of our mission. We want to remove the barriers to inclusion, accommodation and friendship that often arise just because a person has a disability.”

Amanda has been playing softball with NMML for six seasons now. The environment at the games is relaxed and supportive. During the first season she spent most of the game crying and trying to escape the field. Amanda rarely expresses emotion. It is as unusual for her to cry as it is for her to laugh or smile. My husband and I had to reassure ourselves on every drive home that we were doing a good thing.

During Amanda’s second season, another dad called out, “Way not to cry, Amanda!” There couldn’t be a nicer group of people involved in children’s sports. Everyone cheers as each player walks, rolls or is carried into home plate. There is no score. Still, we felt awful taking her.

We told each other that Miracle League was a good form of exercise for a child who has difficulty walking. We discussed the value of fresh air and socialization with her peers. We’d quote Tom Hanks from the movie A League of Their Own, and remind Amanda, “There’s no crying in baseball.” But mainly, we felt terrible that every Saturday morning we forced our little girl to do something that made her cry in the name of “fun”.

Of course, Saturday morning softball wasn’t the only time that we’ve had to force Amanda to do things she doesn’t want to do. We made her go to therapy several times a week for years. We’ve taken her to have multiple surgeries. In a way, going to baseball toughened us up for all of the other things we had to do for Amanda's benefit.

The most surprising outcome of our participation in North Metro Miracle League has been Amanda’s friendship with Erin. A typical teenager, Erin is Amanda’s first and best friend. For the past three years, Erin has been spending her Saturday mornings acting as Amanda’s Miracle League buddy.

With Erin’s gentle guidance, Amanda stopped crying during games. She even began to cooperate. Now she looks forward to going every Saturday morning. At the beginning of this fall season Erin called to let Amanda know that she was going to be her buddy again. Amanda was so happy that she made a card for Erin. Amanda never draws or colors voluntarily. That in itself was a minor miracle.

Erin’s friendship has expanded beyond the baseball field. She has helped us out at home - she even came to Amanda’s birthday party! Due to her disabilities, Amanda finds social interactions difficult. However, Erin never makes Amanda feel different. They enjoy each other’s company and smile when they are together. Just as the website promised, playing softball really did remove a barrier to friendship for Amanda. As far as we’re concerned, more than exercise or fresh air that has been the biggest miracle to come out of the North Metro Miracle League.

Wednesday, April 4, 2012

Spring Break Atlanta Stay-cation

Atlanta|Fernbank|Stone Mountain|Zoo Atlanta

Spring Break Atlanta Stay-cation


We're staying home during Spring Break this year. Mainly because the one time we went away for the week of Spring Break the return traffic (from Florida to Atlanta) was insane - the trip home took 3 hours longer than the trip down. I know it's not a novel idea. As a child we never went anywhere for school breaks. I think sometimes as parents we feel that we "have" to make vacations special. The beauty of this plan is that it is special. It allows late mornings, lazy afternoons laying the grass looking at the clouds, ball games in the yard and al fresco dinners on our back deck. So relaxing!

I researched all sorts of things to do within an hour of our home, a suburb north of Atlanta. I debated some farther trips - like Chattanooga, TN but discarded the idea. I found plenty of free or low cost activities within an hour of home. Some of the things we did were every day things. We went to the local mall and had soft pretzels and ice cream cones. We window shopped, watched videos in the Disney Store and rode the carousel. Total cost about $20. One afternoon we went swimming at our local YMCA.

We have are lucky enough to have two nice nature centers close to home- Autrey Mill Preserve and Chattachoochee Nature Center. Located on 46 acres of ravine forest Autrey Mill is FREE to explore the historic homes and nature paths.  The Visitor Center is accessible and houses several tanks of snakes, lizards and frogs. Outside there are ducks. For a small donation you can get a cup of duck feed and the ducks will adore you. None of the historic homes or trails are wheelchair accessible but its a fun place to spend an hour - longer if you aren't mobility impaired. Some of the trails lead to a replicas of a Native American lodge and tee pee as well as a beautiful stream. They offer a number of historical and nature programs for about $5.00/person.

Chattahoochee Nature Center offers several walking trails including a boardwalk path, animal encounters and a nice play area.They a licensed rehabilitation center for native raptors, mammals and reptiles so you can see more than 50 different species that were rehabilitated, but unable to be safely returned to the wild. Chattahoochee charges $8.00 per adult and $5.00 per child to visit. We were able to bring a wheelchair to the Nature Center and along the boardwalk. The remainder of the Center wasn't accessible. Still, a great afternoon for under $30.
 
Another great FREE Atlanta destination is the Fernbank Science Center which houses a small museum, a planetarium (cost $4/adults, $3 kids ) and on Thursday & Friday nights an observatory open to the public. It is all wheelchair accessible. Nearby is the FREE Fernbank Forest which has 1½ miles of paved trails through 65 acres relatively undisturbed forest in the middle of Atlanta. Fernbank Rose Garden is also FREE and a lovely place for a quiet walk.


Because we live outside of a major metropolitan area there are a number of large tourist attractions. Our big splurge was to get annual family memberships to three local attractions. All are withing about an hour of home and will pay for themselves in 2 visits. We joined Fernbank Museum (see my previous blog)-family Membership cost $95- and Zoo Atlanta - family membership cost $99 (you can get a $10 discount online).
 
Zoo Atlanta is fully paved with (for the most part) gradual slopes. The path between the Backyard Habitat and the Children's Zoo is extremely steep and I wouldn't recommend taking it if you are pushing a wheelchair or stroller. The rest of the park is easily accessible by wheelchair. However, disabled parking is very limited - causing many visitors to become pretty aggressive about getting a space. We tried to go this week but were beat out of a parking spot despite waiting and having our turn signal on. So much for Southern hospitality!

I love Zoo Atlanta, despite the difficult parking. It is a modern Zoo with roomy naturalistic habitats for the animals to enjoy. One of the best things about being a member is free admission to the 2 member nights offered each year. Its wonderful to explore the Zoo in the evenings. The animals are often more active as the temperatures are cooler. Members Only Nights also feature live entertainment and special animal encounters- which my girls love!

For the first time we also bought season passes to Stone Mountain Park. Stone Mountain is a truly weird place - its a gigantic monument dedicated to the fallen leaders of the Confederacy. The carving depicts Confederate President Jefferson Davis, General Robert E. Lee and Lt. General Thomas "Stonewall" Jackson. It is literally carved into the side of a mountain - the South's own answer to Mount Rushmore. Really - it's not my goal to glamorize the secession and all it stood for. The annual pass lets us explore the various park exhibits and rides like the SkyRide and Gesyer Towers anytime we want throughout the year.  Stone Mountain houses a petting zoo, has a petting zoo attached to the Antebellum Plantation and Farmyard attraction. The farmyard offers a live show with trained goats and sheep.

My goal in going to Stone Mountain is to desensitize Danielle to fireworks before we head to one of those overpriced theme parks later in the year. Stone Mountain has a lasershow most nights during school vacations and on weekends. Despite living in the area for 15 years, we've never been to the show. You don't have to join to see the show - its FREE, sort of. You still need to pay the $10 park admission (parking fee). You can bring your own chairs and blankets. I didn't know that when I joined...  

I would encourage everyone to follow our model if you can. Most areas have unique, fun local spots to explore. Consider searching for a nature center, a playhouse, a puppet theater or a local history or children's museum. For less than the cost of two days at a theme park we had a week of great experiences as well as opportunities for a year of family fun through our new memberships.


Monday, July 18, 2011

Broken Hip, Broken Heart – A Cautionary Tale

This is a sad story, not the kind I like to write.

Recently, Amanda fell and broke her hip at school. Here’s the heart breaking part of the story from a mother’s perspective. This is the second time that Amanda has taken a serious fall at school that has ended in surgery. This second fall was both foreseeable and preventable had the Fulton County School System acquiesced to our request for dedicated paraprofessional to oversee Amanda’s safety four years ago. 

Amanda - bowling before the fall

Even more agonizing to me than the injury has been the Fulton County School System’s complete lack of regard for my child’s safety or concern for her recovery. The Fulton County Georgia Risk Manager was slow to return our calls, didn't provide us with contact information that we asked for and essentially ignored our repeated requests for information and reasonable accommodation following the accident. His stand was quite simply “you can’t sue the County.” Tragically, that’s true. It’s called sovereign immunity. Generally speaking it is the doctrine that the State cannot commit a legal wrong and is immune from civil suit. It’s a vestige of the old English law “you cannot sue the King.”

Doesn’t the State have any obligation to protect the health and welfare of the children attending public school? Most people assume that it does, however, that is not the case. Had the same event happened at a private school, negligence and liability would be fairly easy to prove. However, because Amanda attends public school it is irrelevant whether or not the school, County or State was negligent. You, the taxpayer and parent, have no right to pursue legal action against a State entity. In most states a parent would be able to sue the State’s insurer. However, Georgia is self-insured, meaning that there is no separate entity to assume liability and cover resulting damages.

Amanda following surgery June 2011
We all have certain expectations when we send our children to school, whether they are typical children or have special needs. Most of these expectations would seem reasonable to the common man. Is it unreasonable to expect that when you put your child on the school bus he or she will be taken to the school you were told they would be attending? Is it unreasonable to expect the school to call or otherwise notify a parent if the child is delivered to the wrong school? Is it further unreasonable to expect incidents such as a slip and fall to be promptly recorded and the parents notified in a timely manner?

If these expectations are all reasonable doesn’t it follow that it is reasonable for the School System to assume liability for the accident?

In this situation, the school’s actions both before and after the incident can certainly be called into question under the “reasonable person” concept of law. Here is what happened:

On June 7, 2011 somehow Amanda ended up at Centennial High School in Roswell, GA instead of Alpharetta Elementary School. We had been told that she would be continuing at Alpharetta Elementary for Extended School Year (ESY). She had her backpack with her, on the outside was a photo ID of our family with our names and contact information. No one called to let us know that she had been transported to the wrong school.

Apparently one teacher recognized her and they called Alpharetta Elementary School. Between the two schools it was decided to leave her at the high school for the remainder of the day. Neither school called us.

Sometime around 9:00 that morning Amanda fell. There was no visible bruising so the school continued to force her to walk, despite her complaints. Amanda is non-verbal so her complaints typically consist of grunts, moans and howls. She doesn’t cry.
Finally five hours later, the decision was made to call the Special Needs Nurse.  The nurse called me from her cell phone on her way to the high school. It was then that I learned where Amanda had been all day. I could immediately tell from her description of Amanda’s behavior that it was a serious injury. I called my husband, Kevin, and sent him directly to pick her up (of course, he too, wondered why she wasn’t at the elementary school.)

When Kevin got to the high school, there was no written accident report available, but the teachers described the incident to him. He took Amanda to her primary care physician where they x-rayed her right leg. While Kevin was waiting for the x-rays to be read the ESY coordinator from the Elementary School called me at home and said, laughing, “Do you know that Amanda’s been at the high school all day?’ “Yes, I do now, and I think she has a broken leg’” I shot back. The poor woman hadn’t been informed of the accident either.

Upon x-ray it was determined that Amanda had a femoral neck (hip) fracture. Kevin drove Amanda to the children’s hospital in downtown Atlanta and she was admitted for emergency surgery, roughly 11 hours after the fall.

The fracture was misaligned and required two surgical screws to hold it in place. During her recovery Amanda struggled to breath. Three days later it was discovered that the lower section of her right lung had collapsed, possibly due to the surgery, possibly due to her fall. She remained on oxygen for a week following the surgery. Due to the severity of the break she came home with a “No Weight Bearing” restriction. That meant no standing for transfers in and out of bed, a chair or her wheelchair.

More than two weeks after the accident we finally received a written accident report from the school. Right now her prognosis is good.  There is a possibility that due to the delay in reporting and treating the injury critical blood flow may have been interrupted to the bone. Osteonecrosis (bone death) occurs when part of the bone does not get blood and dies. It occurs in a small percentage of fractures of the neck of femur, because the blood supply is interrupted. If this sets in, Amanda may require a hip replacement. Naturally we don’t expect this to happen.

But, then again, we didn’t expect Amanda to have a second serious fall at school. The first fall occurred in May, 2007 during a “water day”. Her teacher called to tell me that Amanda had fallen and "fussed a little"; not to be surprised that there was a small bruise above her lip. She didn’t give me any other information about the accident - where it happened or how. When Amanda got home I noticed that she had broken a front tooth below the bruise. I immediately took her to the dentist and had it repaired.

Within days it became apparent that something had also happened to Amanda's back. The previous year Amanda had “growing rods” surgery to correct severe scoliosis. The plan was to lengthen the rods incrementally over the period of several years in order to avoid a complete spinal fusion. We were careful to put in her return to school documentation that a fall could result in a very serious injury to her.
Broken rod May 2007

We took her to her orthopedic surgeon who determined that the top of Amanda's right rod had completely dislodged from the bone. This required major surgery - a full spinal fusion years ahead of schedule. To the best of our knowledge the teacher didn’t call the nurse or file a report even though she knew Amanda had the potential for serious complications if she fell. We asked for, but never received, an accident report.

We wrote a letter to the school, explaining the circumstances of the accident and subsequent surgery. At the time we requested that Amanda be assigned a dedicated paraprofessional to ensure her safety. Our request was ignored. Had it been granted Amanda most likely would not have experienced this second fall and resulting complications.

Right now we are spinning our wheels – quite literally as Amanda is now in a wheelchair. We are concerned about how we can protect Amanda going forward when we are working with a nonresponsive school system.

I ask you, what would a reasonable person do in these circumstances?